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The youngster has been battling inoperable cancer since she was 10 months old, enduring gruelling chemotherapy for two-and-a-half years.The treatment appeared to help but the tumour has since grown and her parents now fear this Christmas maybe their last with Orla.Then, around nine months old, she began to frequently vomit, throwing up her milk most mornings.Worried Susan – who has another child, three-year-old Edward with her designer husband Simon, 37 – took her daughter to the GP, who initially thought she'd caught a simple bug.Over £500m is spent on cancer research in the UK every year, yet less than 2 per cent is spent on brain tumours Now, Luke has set up an online page to raise funds for both The Sick Children's Trust and Keech Hospice Care, both of whom Susan says have been an incredible help to her family.She said: 'I'd like to say how hugely grateful I am to the charities.Praising her courageous daughter, Susan said: 'She's incredible.
However, in May this year, a routine check-up scan discovered it had begun to grow again.'She's started chemotherapy again, which will continue to next year,' said Susan. Her tumour is currently classed as inoperable, which may change if it starts to shrink, but it's a case of waiting to see.'We'll find out just a few days before Christmas if the chemo is working. We desperately want to celebrate Christmas, but we're very aware it might be our last with Orla.'She's also been left hugely disabled, as the tumour is on her right frontal lobe, which affects cognition.
Tanya added: 'Every day, Luke will ask how the page is doing and whether we've got any more donations.'He's still adamant he doesn't want presents.' Last week, Luke and Orla finally met in person for the first time, spending the afternoon playing.
Orla made such an impression on Luke that afterwards told his mother he wished she was his cousin too.
Almost 11,000 people are diagnosed each year with a primary brain tumour, including 500 children and young people – that's 30 people every day.
Over 5,000 people lose their lives to a brain tumour each year.